Comments on: The Boy Whose Skin Fell Off

By: Lilah

Lilah — Thu, 26 Oct 2006 18:59:48 +0000

Oh what an incredible man and inspiration to all of us! Sad we had to lose a man with such a strong, beautiful spirit but glad he is now released from his suffering. Jonny’s story made me cry, laugh, ponder, cringe in horror, be thankful, feel stronger, fear death less.. an entire range of emotions. Truly one of the most touching shows I have ever seen on television. Loved his can of beans and Queen song for his funeral. Wherever you are out there, Jonny, thank you. Thank you SO much. You are still loved. Thank you for teaching me such wonderful things in less than an hour.

By: Amy Heuston

Amy Heuston — Thu, 26 Oct 2006 16:03:51 +0000

My name is Amy Heuston, I am an 18 year old girl who lives in Canada. Last night I was watching tv and I saw the tittle, The Boy Who’s Skin Fell Off. That made me wonder what it was about so I watched it. I don’t usually watch documentary kind of things, but right as soon as I heard Kennedy’s voice, I was interested. I cant believe how strong he was throughout that whole ordeal. He was making jokes about it and other things on the radio, and just on a daily bases. He is defiantly someone who I would have loved to meet. He had great spirits, and he never let the fear of death get to him. I can honestly say, I never thought anyone, let alone the state that he was in, go pick out their own coffin, and make jokes about what its going to look like. I was greatly afraid of death, but when he said the part about not to be afraid of death, and to plan your funeral as if it were an anniversary, that really got me to thinking, and its true, why spend your whole life thinking about death? yes its eventually going to happen, but live life right now as you can. Kennedy had a horrible dases, and he still was vibrant, loving, funny, and strong person. To me, he was something special, and im very proud of how strong he was. He will always be remembered by me, and he will be a legend.

By: Phil

Phil — Sun, 02 Jul 2006 01:08:56 +0000

I feel for you. This documentary was first aired on British Channel 4 with only two or three short(ish) breaks, as is usual here for commercial television.
I would imagine that the whole impact of the film was lost with the advert ‘blitz’.